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Karen T's avatar

Wow, this is a really powerful post. Yes! Yes! Quality of life! There is indeed so much focued on lab results, irrelevant numbers, disease progression. But no, I can't remember my PC doc EVER asking about my quality of life.🤷

He sees me come in - smiling, trying to be upbeat, probably looking like a regular person with no cares. Well, he usually notes I'm anxious (which I'm not when I come in); I'm just trying to be friendly and informative of my conglomerate of symptoms. Then later, I get to hear I'm such a complex patient...😓

Try living a day in my world with my pain, my limitations, my dysfunction, and then talk to me about being anxious and complex! You wouldn't last an hour, buddy...

Chronic Illness & Commentary's avatar

Yes!!!! I have had this exact experience as well. Even after I’ve filled out a depression/anxiety questionnaire in my doctor’s office, it never gets brought up! It’s so sad what gets lost between a doctor and a patient with CI. I get the job that doctors have to do. They’re there to treat. But at the same time, I wish more doctors would treat the WHOLE person, and not just the disease inside them. Thanks for reading friend and I’m sending you some hugs and good vibes!!

Karen T's avatar

Thanks, love this! Though I may have to find a new PC doc after my physical in 2 weeks, I might just get too snarky for him with all this great Substack information, power through community, and old lady sass !!😂🤣😂